Looking for a good Doctor

[bambi275]

Not really - she rightly says that some people get misdiagnosed, that is what happens when medical staff, who are fallible, examine complex systems such as the body. A few anecdotes about misdiagnosed autoimmune disorders does not prove that CFS is an autoimmune disorder, nor does it prove that 30 million CFS sufferers have been systematically misdiagnosed.

I don't know whether CFS is a physical disease or wholly psychosomatic. I'm sort of surprised that if there are 30 million sufferers (mostly in western countries with advanced healthcare system) that the drug companies have not got onto it. Of course, the campaigns of intimidation by CFS sufferers in the US against anybody doing meaningful studies into the efficacy of psychiatric interventions into CFS do not help the situation.

Sources for 'campaigns of intimidation by CFS sufferers' please?

And I was referring to her statement at 13:36 re online posts but seeing as you have chosen to go off on a tangent saying how ME is mainly a disease found in the developed world that has an advanced healthcare system have you considered the reasons for this? Mortality and morbidity rates from other illnesses in the under developed areas of the world will naturally account for less reporting of ME in such countries. Plus, the developed world is now suffering from many health problems due to our poor diet resulting from processed foods, convenience shopping and sadly, I have to admit, some of what Pnp had to say.

[bambi275]

Anon56789, don't worry, you haven't caused any trouble, many of us on here are opinionated and have been disagreeing with each other for many years without fisticuffs ever being involved

[Albion102]

Sources for 'campaigns of intimidation by CFS sufferers' please?

.

Unlike me to quote the Telegraph, but I could have quoted the Guardian.

http://www.telegraph.co.uk/news/heal...ogy-of-ME.html

[Hamble]

I do not think health symptoms can be ignored.
They have to be considered alongside what is normal for the person suffering them.

Many tests are done to rule out a specific diagnosis.
First hand account.
Physical examination.
Blood tests.
Past medical history.
Family medical history.


Unfortunately life is unfair in that a negative specific test does not always rule out a positive test later in life that is why symptoms are important to record and act on if they change.

Not having a diagnosis does not mean symptoms are not discounted or
ignored.
Part of medical care is recording and watching for 'red flags' -symptoms
that (along with the ones you have now or new symptoms ) demand further investigation.

[bambi275]

Unlike me to quote the Telegraph, but I could have quoted the Guardian.

http://www.telegraph.co.uk/news/heal...ogy-of-ME.html

Ooh, Albion, only 5 years out of date, 2/10, must try harder.

[Little Londoner]

[QUOTE=anon56789;6584346]First of all thank you for all your replies, I didn't come here to cause trouble but seems it might have done, IQUOTE]

You haven't caused any trouble it is the usual suspect who wades in with his size 3 boots and condemns anyone who doesn't follow his hair shirt and self flagellation regime before he goes out scratching cars because he doesn't like them. He is a complete moron as his condescending remarks to you prove.

[The PNP]

[QUOTE=Little Londoner;6584386]

First of all thank you for all your replies, I didn't come here to cause trouble but seems it might have done, IQUOTE]

You haven't caused any trouble it is the usual suspect who wades in with his size 3 boots and condemns anyone who doesn't follow his hair shirt and self flagellation regime before he goes out scratching cars because he doesn't like them. He is a complete moron as his condescending remarks to you prove.

If you are aware of criminal damage being done, i.e. cars having been scratched, I strongly suggest you report it.

[Albion102]

Ooh, Albion, only 5 years out of date, 2/10, must try harder.

Research takes a long time, especially into long term studies like measuring the effects of CBT. However, I see from the NHS website that CBT is where the NHS seems to direct people presenting with CFS.

I've had a bit of a trawl and it is very difficult to find any peer reviewed research that has established that CFS has a physical cause. The best I could do was to find research that suggests that many of the physical symptoms in long term sufferers are the same as the physical symptoms you get from doing nothing.

However, the OP seems to have symptoms consistent with MS and these should be reported to their GP. Although I find, if I look hard enough, I can find symptoms of virtually every non-infectious disease in my aging body.

[Little Londoner]

[QUOTE=The PNP;6584439]

If you are aware of criminal damage being done, i.e. cars having been scratched, I strongly suggest you report it.

Oh am I mistaken? I thought I'd just follow your lead and make insinuations like you do without any proof. What's good for the goose and all that. Don't worry if I found someone scratching cars I would definitely report it.

[Hamble]

Research takes a long time, especially into long term studies like measuring the effects of CBT. However, I see from the NHS website that CBT is where the NHS seems to direct people presenting with CFS.

I've had a bit of a trawl and it is very difficult to find any peer reviewed research that has established that CFS has a physical cause. The best I could do was to find research that suggests that many of the physical symptoms in long term sufferers are the same as the physical symptoms you get from doing nothing.

However, the OP seems to have symptoms consistent with MS and these should be reported to their GP. Although I find, if I look hard enough, I can find symptoms of virtually every non-infectious disease in my aging body.

The NICE guidelines clearly state a diagnosis is helpful to patients and Dr's.
Until there is specific evidence of cause or symptom causing of Chronic Fatigue Syndrome an open mind and close of watcher of developing symptoms alongside excluding other recognised medical conditions is good medical practice.

In the above respect the condition is treated much the same as any other non fatal medical condition.
Some people will suffer mildly others severely.
Some recover after time others do not.
Some recover with drugs or treatment others do not.

If one thinks it is a disease of the mind one needs to stop and think
how to treat patients with the respect and care demanded for mental health symptoms.

[stevenlie]

You should definitely figure out what your problem is! Go to a good lab and have your blood test done!

[Little Londoner]

If one thinks it is a disease of the mind one needs to stop and think
how to treat patients with the respect and care demanded for mental health symptoms.

That's why the "expert" is a chimney sweep not a Doctor.

[Hamble]

Are you still in the business pnp?

[bambi275]

Research takes a long time, especially into long term studies like measuring the effects of CBT. However, I see from the NHS website that CBT is where the NHS seems to direct people presenting with CFS.

I've had a bit of a trawl and it is very difficult to find any peer reviewed research that has established that CFS has a physical cause. The best I could do was to find research that suggests that many of the physical symptoms in long term sufferers are the same as the physical symptoms you get from doing nothing.

However, the OP seems to have symptoms consistent with MS and these should be reported to their GP. Although I find, if I look hard enough, I can find symptoms of virtually every non-infectious disease in my aging body.

Bit if light reading for you:
http://kavlifondet.no/2016/12/new-st...esearch-group/

[bambi275]

And another link, although this is for a crowdfunding page there are some references to scientific papers at the end of the article
http://www.crowdfunder.co.uk/a-novel...tment-of-mecfs